Things to Remember if You’re Diagnosed with Cancer

My Doctors Office

Replying to emails

I get a good amount of email from this site. A lot of it is people asking questions about signing up or hosting a drive, which I’m more than happy to answer or redirect as necessary, but some of it is more personal. From a parent of a child diagnosed with cancer, or someone who has previously lost someone dear to them in the past. These are the emails that make me pause in front of my computer, searching for the right words to affirm, or comfort, or explain.

I’m not an authority on this stuff by any means. I do my best to provide as factual information as possible, but I’m not formally trained in medicine, psychology or counseling. I’m only an authority on my own experiences. I have lived this, and I believe that counts for something. And I know that experiencing the weight of a cancer diagnosis is something that can’t be taught in a classroom.

The timing of my diagnosis was interesting. I was 20 and halfway through college, which is arguably one of the most formative times in anyone’s life. I was old/mature enough to fully understand the reality of my circumstances, which may not be completely true for those who are diagnosed at a younger age. I signed my own medical forms, and by virtue of my age my parents were legally bystanders in my medical procedure. I wasn’t old enough to see my diagnosis through the lens of a spouse or family, which I’m sure creates an entirely different slew of thoughts and concerns in a patients’ head. I was toeing the line between adolescence and adulthood, somewhere between loving the independence of college and longing for the comfort of my mom’s home cooking. I was awake a lot of nights in the hospital, wondering about things like marriage, kids and careers. All of these things I assumed were just around the corner, only to then realize that the corner might not even exist.

I particularly enjoy emailing with patients who find themselves in similar circumstances: 20-something, semi-unbelieving that this is actually real, and full of questions/uncertainty about the future. I’ve had the opportunity to talk to a few newly diagnosed patients about their situations, and while I can’t fully explain how, I feel an automatic connection with these people that I’ve never even met before. When you’re diagnosed with cancer at any age, you join a pretty exclusive club. A club of people who can’t help but empathize with you on a level that others cannot, and in a way that neither of you can even express. It’s the unspoken acknowledgement that finally, someone understands. And when that connection is age-specific, it’s even stronger.

Some people have asked me if I have any tips for them before they undergo chemo. After thinking about it for a while and reflecting on my own experiences, it turns out I do. These are adapted from an email I previously sent out a couple months ago:

Continue reading “Things to Remember if You’re Diagnosed with Cancer”


A Recap of April

So the updates to this site became significantly more sparse during the month of April. That was a result of a few factors:

  • I didn’t host any drives in April, so there weren’t many drive announcements or recaps to highlight.
  • I spent a couple weeks developing the Donation Stories section, which Dennis was so gracious in lending his story to. True story: Dennis was at the hospital a couple weeks ago to donate white blood cells (does his generosity ever stop?) and he was randomly fist-bumped in the hall by a girl who had seen his bone marrow donation video! She was there herself to donate marrow, and said the video really helped her out. 🙂
  • I was pretty burnt out from the end of last month, where I helped coordinate four drives in two weeks (including three in the last week). At times I’m still trying to find a balance between work, Cheekswab, and being 26.

But here we are in May, and it’s been four and a half months since launch, and things are still going strong. While I can’t promise a constant stream of updates into the future, Continue reading “A Recap of April”


Columbia University Teachers College Bone Marrow Drive NYC – Thursday 4/19

Janet Liang Columbia Teachers College Drive

Swab for Janet Liang at Teachers College

Just a quick drive announcement for any folks in New York City!

Janet Liang is still searching for a donor match in the bone marrow registry! Despite the fact that her initiative has helped to register over 13,000 people and resulted in marrow matches for several others, Janet herself still needs a donor. You could be the one to save her life. If you’re in New York City, please consider visiting Teachers College at Columbia University THIS THURSDAY to see if you’re a match!

Drive details:

  • Who: Team Janet, Volunteers from Teachers College (and friends of cheekswab!)
  • Where: Everett Lounge, 525 West 120th Street
  • When: 3:00pm – 9:00pm
  • Why: To save lives!

Remember that all the information you need with regards to the need, the process and frequently asked questions can be found throughout this site. Get informed, get convicted, and get registered!


Announcing Dennis’ Donation Story and Cheekswab on YouTube

For the past several months I’ve been working on a new section of the site entitled Donation Stories. The purpose of this section is to chronicle the stories of people who have donated marrow in an honest and personal way. I’ve done my best to provide comprehensive information about bone marrow donation on this site — the methods, the logistics and time commitment, and addressing some common questions — but something was missing.

Since I’m unable to personally join the registry for medical reasons, I’ll never know what it’s like mentally and emotionally to go through the process of donating marrow. I can write about the parameters of the time commitment but I don’t know what it’s actually like to sacrifice the time for checkups and blood tests. Up until now, the emotional and mental perspective is what this site has lacked. The Donation Stories section hopes to address that need.

Dennis' Donation Story

I’ve written about Dennis previously in this blog and the fact that he was asked to donate to an anonymous patient in early December. What you didn’t know Continue reading “Announcing Dennis’ Donation Story and Cheekswab on YouTube”


Whitehouse AAPI Conference Call on Leukemia and Bone Marrow Recap

Whitehouse AAPI

Last Thursday I was able to listen in on a conference call hosted by the Whitehouse Initiative on Asian Americans and Pacific Islanders as representatives from both government agencies and grassroots organizations shared their experiences in spreading awareness for bone marrow donation. The speakers on the call all brought an enormous amount of experience and knowledge to the discussion. They included representatives from:

Continue reading “Whitehouse AAPI Conference Call on Leukemia and Bone Marrow Recap”